Mission Statement

To promote the needs of people with Huntington's disease and their families and to provide them with a strong single voice.

Description

Founded in 1978 to promote the needs of people with Huntingtons disease and their families and to provide them with a strong single voice, the Huntingtons Disease Assocation became incorporated in 1983. We are a not-for-profit, non-government organisation with a focus on providing information, education, advocacy and support for people with Huntingtons disease and their families, and we rely on donations and fundraising to augment a small grant from DHHS which covers our adninstration costs. Our work encompasses providing a quarterly newsletter to keep the HD community informed on current international research activities and information, a small resource library, support groups, social networking, fundraising, resource sharing and special needs support, education including conferences and seminars, referral to specialist services, 24 hour family phone support.